February 28th is Rare Disease Day and it aims to raise awareness with policy makers and the public of rare diseases and their impact on the lives of patients, the families and caregivers.
One of the Rare Diseases around is Spinal Muscular Atrophy. Spinal muscular atrophy (SMA) is a genetic disease affecting the part of the nervous system that controls voluntary musclemovement. ... SMA involves the loss of nerve cells called motor neurons in the spinal cord and is classified as a motor neuron disease.
On Wednesday, MAG speaks to Yap Sook Yee and Edmund Lim, founders of WeCareJourney and also parents of Branden, an 8 year old who was diagnosed with SMA when he was 1.
Listen in as Sook Yee and Edmund share their story about their little family's journey and how they will continue to create awareness about SMA and other rare diseases on AFO LIVE!